The Dravet syndrome community is invited to share videos highlighting the sounds of their everyday life with fewer seizures on FINTEPLA® (fenfluramine). The project will display a gallery of videos ...
*Jenece Bond, founder of the Taylen Lauren Horton Foundation, a non-profit, is on a mission to change lives and raise awareness for Dravet syndrome. Like most people, you’ve probably never heard of ...
It’s a dilemma that keeps Smyrna resident Shannon Cloud up at night: Who will care for her adult daughter when she and her husband die? Though Alaina Cloud just turned 19, she requires ...
TOLEDO, Ohio (WTVG) - Dravet Syndrome is a rare and severe form of epilepsy. Treatment options are limited and a local family is working to help change that. The family is hosting an event later this ...
Fenfluramine, a drug that was previously sold as an appetite suppressant before it was withdrawn from the market in 1997 over concerns about its link to heart valve problems, may have a new ...
Praxis Precision Medicines, Inc. has announced that the U.S. FDA has granted Rare Pediatric Disease Designation for its drug relutrigine in treating Dravet syndrome, a severe genetic epilepsy often ...
Stoke Therapeutics, Inc. (Nasdaq: STOK), a biotechnology company dedicated to restoring protein expression by harnessing the ...
LOS ANGELES — Zorevunersen led to 75% to 80% seizure reduction in patients with Dravet syndrome, according to Barry S. Ticho, MD, PhD, FACC, chief medical officer of Stoke Therapeutics. “This is ...
We were unable to process your request. Please try again later. If you continue to have this issue please contact [email protected]. Participants given STK-001 in one dose experienced a 43% ...
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