At 50 years old, my health began to deteriorate in ways no one could explain. For nearly two decades, I searched for answers. It wasn’t until I was 69 that I finally learned the truth: I have cystic ...

For those who don’t benefit from modulators, the fight against CF can feel isolating and uncertain. Five members of our community share how they’ve transformed their personal struggles into purpose — ...

Chair Buchanan, Ranking Member Doggett, and Members of the Committee: On behalf of the Partnership to Protect Coverage (PPC), a coalition of nonpartisan, nonprofit patient advocacy organizations, ...

Today, 36 nonpartisan, nonprofit patient advocacy organizations issued the following statement urging Congress to secure an immediate solution to the expiration of the enhanced advance premium tax ...

Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I’m grateful to be on the other side, and am ...

Miracles happen when you least expect them. You manifest them for years, forget about them, give up on them completely, and then boom! You’re blessed with a miracle. In my case, this happened with a ...

Breathing problems (also called respiratory or pulmonary problems) affect the lungs and the airways and are the most serious problems associated with CF. The severity of respiratory problems differs ...

The Gateway Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.