At 50 years old, my health began to deteriorate in ways no one could explain. For nearly two decades, I searched for answers. It wasn’t until I was 69 that I finally learned the truth: I have cystic ...

Chair Buchanan, Ranking Member Doggett, and Members of the Committee: On behalf of the Partnership to Protect Coverage (PPC), a coalition of nonpartisan, nonprofit patient advocacy organizations, ...

For those who don’t benefit from modulators, the fight against CF can feel isolating and uncertain. Five members of our community share how they’ve transformed their personal struggles into purpose — ...

Today, 36 nonpartisan, nonprofit patient advocacy organizations issued the following statement urging Congress to secure an immediate solution to the expiration of the enhanced advance premium tax ...

Living with cystic fibrosis in Pakistan, I held onto hope that Trikafta would one day reach us. Against all odds, it did — and it completely changed my life.

Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I’m grateful to be on the other side, and am ...

I wasn’t supposed to make it this far. I was born six weeks early, to parents who weren’t ready. They fought constantly, partied hard, and eventually split up. My sister went with my dad, and I stayed ...

Trikafta has transformed my life in ways I never thought possible. But with that came a sharp awareness of those still waiting for a treatment that works for them. That’s why I’m deeply committed to ...

For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...

This blog discusses suicide and suicidal ideation. If you or someone you know is suicidal, please contact your physician, go to your local ER, or call/text the National Suicide Prevention Lifeline at ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...