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When Scarlet got her first dose of Spinraza 16 months ago...she didn’t have the strength to push the button on Dr. Little’s toy spinner..:today she pushed the button! #progress | Stephen Clark Singer/Songwriter
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Spinraza: Treatment for Spinal Muscular Atrophy
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Scarlet got her 4th loading dose of Spinraza today at the Michigan Institute for Neurological Disorders in Farmington Hills, MI. Hospitals tell me they haven't begun administering Spinraza partly because of the "complexity" of injecting it. Scarlet has now had 4 intrathecal injections without anesthesia and with absoutely no complications or side effects. To contact The Michigan Institute for Neurological Disorders Spinraza Hotline: (248) 553-6220 | Stephen Clark Singer/Songwriter
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'Without Spinraza, I'm fairly certain that Zac probably wouldn't be here.' As the Scottish Government fast-tracks a treatment for spinal muscular atrophy, we spoke to Amy Cameron, who says the 'miracle' medicine saved her son's life. Read more: https://bit.ly/2GrT4cN | STV News
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220101 -- ZAOZHUANG, Jan. 1, 2022 -- A medical worker injects Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy SMA at a hospital in Zaozhuang, east China s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan 8,422 U.S. dollars per dose to 33,000 yuan went viral online and
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